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Endo & Epilepsy

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Endo & Epilepsy

A couple of years ago I had a right-side oophorectomy for ovarian cysts that had torted. Following this, I had severe pelvic pain which they diagnosed as endo following a laparoscopy (also had adhesion) and treated by use of a progesterone implant which, until last week, seemed to be working as had very little pain and was able to continue my life as normal.

Last week I was admitted to hospital with right lower abdo pain - initial though was appendicitis but upon surgical intervention, discovered 5 sites of severe endo which have removed. My question is this - I am aware that after progesteron treatment, my next option is GnRH hormone therapy BUT I have epilepsy and know I can't take this as reduces seizure threshold. I have asked for a complete hysto before but my age (25) and fact I don't have children means I am not a good candidate. Does anyone else know of any treatment that epileptics can take for endo? Or is hysto only option? Many thanks!

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Georgie May 16, 2009 at 2:28 am

My strongest suggestion is to see a endometritis clinic, I am sure they deal with young woman who have epilepsy or other serious medical conditions.

My daughter was diagnosed as having endo at 18, and after trying different things suggested, nothing has worked. She is now 21, and she recently went to a endometritis clinic, who largely deal with woman who have had major problems with conceiving, due to endometritis. This clinic has a high success rate of pregnancies.

She is due to have surgery in early May. The doctor has explained her options, which seems to better than what had been previously suggested by the Royal woman's hospital. The Royal woman's suggested heavy medications, that may cause early menopause, which freaked her out a little, not to mention her partner and I.

I might add she is not trying to conceive, they are controlling the pain etc associated with the endometritis, and find exactly where and how extensive the endo is, he feels that it has spread. They think she has "Chocolate cysts", which I had never had heard of, until she gave some info, I had done some extra research too.

Good luck

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