At age 19 i was diagnosed with Diabetes Insipidus and then at age 22 i was told i am not producing testosterone anymore and need to take the test. therapy. But at the same time i was told to have an MRI and was told to have an brain tumor. Finally i had surgery to remove it 7 years later 5/21/2007 at M.D. Anderson cancer center. I want to know if any one has gone through this. I have lot of questions of if they gone through to what i am going through. I am on several medications since the surgery and so if you can compare to this situation please let me know of your experience or contact me please.
Pilocytic Astrocytomas in a Hypothalamic Region?
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I myself have not experienced this, but I am a caretaker for my father, who had his first bout with urinary bladder cancer in 1982 and finally had his bladder removed two years ago. Your question came up, and I was drawn to it because I have very close friends with diabetes and also with brain tumors. As I'm sure you were advised, your tumor is one of the few types that are entirely curable.
What strikes me most about your question is that I get the impression you were not offered counseling. Is that true? I think it would be hard to find people who have had a similar experience using this forum, because most people with pilocytic astrocytoma are children or adolescents. It seems to me that your doctors should have offered support, and encouraged you to seek out resources to put you in touch with fellow patients you can relate to.
I know of one website that offers information on support groups and will list it below.
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