Any mums with children who have/had newborn epilepsy?

My son was admitted to SCBU at 2 days old and transferred to NICU with brain seizures. He spent 10 days in the NICU and was disharged home with no seizure activity and no medication. He has quite extensive damage to the left side of his brain due to low blood sugar.
He is now almost 7 weeks old and has been experiencing a head jolt for almost a fortnight that I queried with his paed team wondering if they were seizures, they've now developed further so that its a head jolt with an arm spasm and we are now medicating him.

Are there any mothers out there who have experienced similar situations, how did you cope? Did you children go on to be seizure free later in life?

Written By Soniamiller

{ 1 comment… add one }
  • irishpolarbabe March 28, 2009, 2:27 pm

    im not a mother, but im epileptic. if he has epilepsy, which it sounds like he does he wont be free of it. I have had epilepsy for 3 years now. there is no cure for it. He will be on medications for the rest of his life. He will also be epileptic for the rest of his life. If I were you, I would talk to a neurologist and get him check out.

    Hope it Works out for you =)