Do any of you have fibromyalgia and if so what are your syptoms and what treatment do you receive?

I was diagnosed with Parkinson’s disease in 2002. I did well on Requip for a while then Sinetment was added. I have trouble with depression so have been on different anti depressives over the years (even before the diagnoses of Parkinson’s). I have had different things come up that had to be treated but in the last year, pain has developed pretty much all over my body. They say I do have arthritis (not rheumatoid) and a rheumotologist has suggested that I have fibromyalgia. I also have trouble sleeping and stay fatigued all the time. I never have any energy. I am trying to figure out if I just have Parkinson’s and that’s what’s causing my pain as a person can have pain with that or if I just have fibromyalgia or both. I don’t usually do things like normal people or have normal symptoms like other people. I see a neurologist, a pain specialist, a psychiatrist, an internist (my primary physician) and of course a Gyn for the female stuff. It seems no one seems to really know what to do with me. I need any help I can get.
Any help will be appreciated. I no longer take Requip. I do take Sinetment, vicodin, Zanaflex, trazadone, Lexapro, lasix (sometimes) and klonopin.
I have had fatigue for a long time even before zanaflex so even though that may be a contributing factor I don't think it's the sole reason to my fatigue. Again I don't know if it's multiple issues or just one. If the doctors would put their heads together and discuss my case instead of each one giving me this drug and that one then maybe something could be accomplished but doctors don't do that. All this technology and they can't even pick up a phone and call each other to see what's best or run the right test if there should be one to find out the cause of all my pain. I will be 60 yrs old on Sat and don't feel like doing squat. I appreciate the suggestions I have gotten thus far.

Written By Soniamiller

{ 1 comment… add one }
  • mars2boys March 30, 2009, 12:04 am

    Wow, I am sorry that you have so much to deal with. I have had fibromyalgia for 17 years, but I do not have a lot of the “normal” symptoms. I mainly have pain in my knees, ankles, and wrists. The fatigue is a huge issue, and since my pain is worse at night, I do not sleep well. I know some who have had luck with Lyrica for fibromyalgia, but I have not tried it myself. There is also a Guaifenesin protocol that some people have had success with.

    A lot of people have luck with exercise, but it never helps my symptoms. Plus, when you are in so much pain….exercise is often the last thing you want to do!

    Best of luck on your search.

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