Dear doctor,
When a fibromyalgia patient comes to you and they are in tears because they live day in and day out in terrible pain it is not right ofyou to assume they are depressed and send them on their way with antidepressants telling them it is their depression causing their pain.
It is you dear doctor that is causing their depression. How? Well when people are in pain they beleive the doctor will do everything they can to ease their suffering and when the doctor fails to treat their pain or take it seriously the patient is sent out the door with no hope.
What are the patients options? Well they can go to the ER on a regular basis and be emotionally abused some more by the staff and then marked as a drug abuser or at the least made to feel that way.
Or they could just go home and commit suicide. I have read several stories on people with Fibromyalgia who have commited suicide and if you would like to hear one of them just go to youtube and look up Fibromyalgia and suicide.
People with Fibromyalgia are very lucky when they find a caring doctor but they are few and far between.
Doctor if you had to live one ay in the life of a person with Fibromyalgia I garauntee that your approach on this matter would change greatly. You would become obsessed with finding a cure and in the meantime bring as much releife to those suffering from Fibromyalgia as possible.
It is not fun to wake up with a head ache, stiff back, sore legs, sore stiff kneck, and pain shooting through out every joint, muscle and bone of your body. To top it off your tired because the sleep you did have was not refreshing enough or you could only sleep a couple of hours because the pain didn't let up.
I ask you does this sound pleasant? Does it sound like something that you should just learn to live with.
I ask you what would it feel like to break your leg and dislocate a shoulder and go to work and act as though everything is fine. Wouldn't the pain be to much?
Well for allot of people with Fibromyalgia the pain is to much and when the patients cry the doctors are not moved in any way to find their patient, the one they are suppose to be CARING for a good treatment plan to treat their pain.
Some doctors say oh Lyrica it's the Fibromyalgia miracle drug. I can tell you doctor that it is not the case at all. It might help some people, but it doesn't help as many as you all would like us to beleive. Frankly for most it causes more problems than it's worth.
This whol exercise and loose weight thing is for the birds too! Can you beleive that allot of people suffering from fibromyalgia were thin or at least at a healthy weight before they were left to suffer.
People with fibromyalgia are not looking for an easy way out as some nurses and doctors beleive. I know I have read through doctors and nurses blogs. I see what they think of people sufferinf from fibromyalgia. They think we want disability and that we want to be on drugs.
Well I can tell you doctor that my doctors office doesn't write out narcotic pain medciation and if that was what I was after I could have easily change to a doctor I know that will. Also if I was afterdisability I would already have applied since I have not been able to work in more than a year.
I keep hoping that I will find the help I need so that I can go back to work and resume as much of anormal life as possible.
I have played the guinea pig for far to long and have been made very sick several times in the process. I'm tired of this. I know what works for me, but dare I ask and have you think I'm a drug abuser.
I know what works for me because times when I have had UTI pain and been given pain medication for it. I used those pain meds to treat my Fibromyalgia pain and guess what doctor I felt good for the short time I had them. As in good I mean normal, I could clean my own home, sleep at night, and if that was my regular medication I could have possibly even went back to work.
I'll keep quite though for fear if I mention one thing particular that I know will help you will automaically assume I'm addicted to this particular drug and my pain would never stand a chance of beinf treated or taken seriously.
So for now I'm your little guinea pig doctor.
How long will it take you to realise that all you have to do is give me pain medicine and I could be able to function.
Drug test me I don't care, but you might be surprised to learn I have no drugs in my system and also you might be surprised if you do a back ground check and see that I have never had a drug problem!
sincerely your guinea pig,
A fibromyalgia sufferer