im on alot of medication for epilepsy cause iv had it since i was 5 years old and now im 24 years old with my hands full being a single mum to my 22 month old son. since i came out of hospital last year, i was told that i have simple and complex partial sezuires including tonic clonic sezuires which only happen when im asleep, but also i was diagnosed with an anxiety disorder cause i have alot of symptoms of depersonalisation after my sezuires and i feel very anxious and dettached from reality. i went to see a nurophyciastrist who deels with epilepsy and mental health problems only yesturday and got told that he wasnt to sure if i really do have epilepsy or wheather it is mental health problems. and because im on the maximun dose of epileptic drugs, i might need brain surgery. this is to much to take in for me. i also was meant to be haveing CBT for my anxiety disorder but now i wont get seen till another 6 months have flown by. i feel like im been messed about to much here.
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ANSWER:
I’m really sorry to hear that you’re going through such a challenging time. It sounds like you’re dealing with a lot of complex health issues, both physical and mental, and it’s completely understandable to feel overwhelmed.
Managing epilepsy along with anxiety and feelings of detachment can be incredibly difficult, especially as a single mother.
Here are a few points to consider that might help you navigate this situation:
1. Communication with Healthcare Providers: It’s crucial to maintain open communication with your neurologist and mental health professionals.
If you’re feeling uncertain about your diagnosis or treatment plan, don’t hesitate to ask for clarification or express your concerns. If possible, seek a second opinion from another specialist who can provide additional insights.
2. Understanding Your Conditions: It can be helpful to educate yourself about both epilepsy and anxiety disorders. Understanding your conditions might empower you and help you communicate more effectively with your healthcare providers.
3. Support System: Lean on your support system. Whether it’s friends, family, or support groups for parents with similar experiences, having a network can provide emotional relief and practical assistance.
4. Mental Health Support: While waiting for CBT, consider exploring other mental health resources, such as support groups, online forums, or self-help materials that may offer strategies for managing anxiety and feelings of depersonalization.
5. Self-Care: Prioritize self-care as much as possible. Simple activities like taking a walk, practicing mindfulness, or engaging in hobbies can help alleviate some stress.
6. Crisis Management: If you ever feel overwhelmed or in crisis, reach out to a mental health crisis line or local emergency services. Your well-being is paramount.
7. Follow-Up: Keep track of your symptoms and any changes in your condition to discuss with your doctors in future appointments. This information can help them make more informed decisions about your treatment.
It’s important to remember that you’re not alone in this, and there are professionals and communities out there that can support you. Take one step at a time, and don’t hesitate to reach out for help when you need it.
Wish you well.
Richard Lee Garcia, RN